The Shared Health Research Information Network (SHRINE): a prototype federated query tool for clinical data repositories

Weber, G. M., Murphy, S. N., McMurry, A. J., Macfadden, D., Nigrin, D. J., Churchill, S., and Kohane, I. S. The Shared Health Research Information Network (SHRINE): a prototype federated query tool for clinical data repositories. J Am Med Inform Assoc 2009;624-30

Acceptability of a personally controlled health record in a community-based setting: implications for policy and design

Weitzman, E. R., Kaci, L., and Mandl, K. D. Acceptability of a personally controlled health record in a community-based setting: implications for policy and design. J Med Internet Res 2009;e14

Substitutability: Why, What and How?

Substitutability is a property of software applications that allows the users of such systems fine grained choice and control of the way their computing environment works for them without. This is in marked contrast to existing healthcare applications, particularly electronic health records which are typically monolithic and do not allow substitution for functions by other vendors without extensive technical support, it at all possible. I review here early questions that follow from the adoption of a substitutability model in health care information technology.

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Open and Safe HIT Platforms

How much do you really want a HIT platform to be like an iPhone?

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Ten Principles for Fostering Development of an “iPhone-like” Platform for Healthcare Information Technology

Leading health care information technology researchers, physicians, and renowned experts in innovation released a set of core principles to guide the creation of a new health information infrastructure to better support the nation’s complex and evolving health system.

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In the New England Journal of Medicine:
No small change for the health information economy

Mandl KD, Kohane IS. No small change for the health information economy. N Engl J Med. 2009 Mar 26;360(13):1278-81

Early experiences with personal health records

Halamka, J. D., Mandl, K. D., and Tang, P. C. Early experiences with personal health records. J Am Med Inform Assoc 2008;1-7

Evaluation of influenza prevention in the workplace using a personally controlled health record: randomized controlled trial

Bourgeois, F. T., Simons, W. W., Olson, K., Brownstein, J. S., and Mandl, K. D. Evaluation of influenza prevention in the workplace using a personally controlled health record: randomized controlled trial. J Med Internet Res 2008;e5

Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients

Bourgeois, F. C., Taylor, P. L., Emans, S. J., Nigrin, D. J., and Mandl, K. D. Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc 2008;737-43