Improving patient access: small steps and patch-ups

In a blog post earlier this month, I advocated for ONC and CMS to adopt a grand scheme to improve patient data access through the SMART on FHIR API. Here, I’ll advocate for a very small scheme that ignores some of the big issues, but aims to patch up one of the most broken aspects of today’s system.

The problem: patient-facing “transmit” is broken

Not to mince words: ONC’s certification program and CMS’s attestation program are out of sync on patient access. As a result, patient portals don’t offer reliable “transmit” capabilities.

2014-certified EHR systems must demonstrate support for portal-based Direct message transmission, but providers don’t need to make these capabilities available for patients in real life. Today, two loopholes prevent patient access:
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CCD: Show me the codes!

In my 7/24/2012 post, I observed that exchanging uncoded lab results is the state of the art.

Why worry? SMART is pushing to enable third-party apps on disparate health IT systems, and codes are the glue holding meaning together. Without coded data, apps can’t tell a Hemoglobin A1c measurement from a monocyte percentage!

In the USA we have substantial infrastructure to promote the flow of coded data. So where do things break down?

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